EoE Resources
Medical Organizations & Educational Resources
- American Academy of Allergy, Asthma & Immunology (AAAAI) – Comprehensive EoE information and treatment guidelines
https://www.aaaai.org/conditions-and-treatments/related-conditions/eosinophilic-esophagitis - American College of Allergy, Asthma & Immunology (ACAAI) – Patient education and symptom information
https://acaai.org/allergies/allergic-conditions/eosinophilic-esophagitis/ - Mayo Clinic – Detailed symptoms, causes, and treatment overview
https://www.mayoclinic.org/diseases-conditions/eosinophilic-esophagitis/ - Cleveland Clinic – Patient-friendly EoE information and management tips
https://my.clevelandclinic.org/health/diseases/15522-eosinophilic-esophagitis-eoe - American Gastroenterological Association (AGA) – Professional guidelines and patient resources
https://gastro.org/clinical-guidance/guideline-toolkits/eosinophilic-esophagitis-toolkit/
Patient Advocacy & Support Organizations
- American Partnership for Eosinophilic Disorders (APFED) – Leading patient advocacy with resources, research updates, and support
https://apfed.org/ - Campaign Urging Research for Eosinophilic Disease (CURED) – Patient advocacy and research funding
https://curedfoundation.org/ - EoE Connection – Patient stories, treatment resources, and community support
https://eoeconnection.org/
Online Communities & Forums
- Reddit r/EosinophilicE – Active community for questions, experiences, and support
https://www.reddit.com/r/EosinophilicE/ - Inspire EoE Support Group – Moderated online community with medical expert involvement
https://www.inspire.com/groups/eosinophilic-esophagitis/ - Facebook EoE Support Groups – Various private groups including “Eosinophilic Esophagitis (EoE) Support Group”
- APFED Online Support Groups – Facilitated virtual meetings for patients and families
https://apfed.org/support/online-support-groups/
Research & Clinical Trials
- Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) – NIH-funded research network
https://www.rarediseasesnetwork.org/cegir/ - ClinicalTrials.gov – Search current EoE clinical trials
https://clinicaltrials.gov/ (search “eosinophilic esophagitis”) - Contact Registry – Patient registry for research participation
https://contact-registry.org/
Dietary Resources
- EoE Nutrition – Specialized dietitian resources for elimination diets
https://www.eoenutrition.com/ - APFED Diet Resources – Elimination diet guides and recipes
https://apfed.org/about-egids/diet-nutrition/
Pediatric-Specific Resources
- Cincinnati Children’s Hospital – Center for Eosinophilic Disorders (treating both children and adults) https://cincinnatichildrens.org
- Children’s Hospital of Philadelphia (CHOP) EoE Program – Pediatric-focused information
https://www.chop.edu/conditions-diseases/eosinophilic-esophagitis - Boston Children’s Hospital EoE Resources – Pediatric treatment and family support information https://www.childrenshospital.org/conditions/eosinophilic-esophagitis
Professional Medical Resources
- International Gastrointestinal Eosinophil Researchers (TIGER) – Global research collaboration
- Journal of Allergy and Clinical Immunology – Leading research publication for EoE studies
International Resources
- EoE UK – United Kingdom patient support organization
https://eoeuk.org/ - Canadian Society of Allergy and Clinical Immunology – EoE information for Canadian patients
Note: Website URLs may change over time. If a link doesn’t work, try searching for the organization name directly.